what they don't tell you!!!


 
Posted by Las (1 posts)
Dec 14, 2017 12:25 AM

I was so excited to get the spinal cord stimulator implanted to relieve my chronic dibilitating pain! Returned to surgeon two weeks after for x ray and to have the device programmed!! Doctor and programmer comeback into room white as ghost as the paddles had broken away from tendon and migrated to the base of my skull waiting to paralyze me at any moment. Dr. Said hang out we will get you back in the hospital right away ..,whatever you do don't lay down. I was distraught and pain was increasing and I could not lay down to get relief. Well the hospital refused me, too dangerous for out patient so had to wait an agonizingly long day and was not done until 5:00 the following day. 23 hour outpatient is how it played out and no insurance approval necessary. The surgeon had to remove battery and put sleeve on all and reconnected the paddles to a different tendon. Went back to surgeon two weeks later and I was ready to be rogrammex and programmer spent an hour with me and it cannot be programmed to my pain as paddles had moved. Met with programmer several times and then the engineer was called in whom travels the world trying to help with fail programming!! Now I am stuck with a device in my back that doesn't work . It is quite dangerous to have this removed but the battery is littrrally a pain in my but!!! Called 6 surgeons including doctor that put it in and they don't want to take out because I have medicate now and it doesn't pay enough and I have a fantastic secondary insurance. Wrong battery was put in after lengthy discussions with one programmer and had different programmer present who did not know, Also was never told you cannot have an MRI with this in your back!!! I was told paddles usually shift after 5 years and would need new battery by then anyway. Never realized the damage caused between should blades by putting in this unit. I would not recommend this device to anyone sincerely LAS

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Posted by goofyfoot (1 posts)
Dec 18, 2017 6:26 AM

Thanks for posting your experience. I was considering having one put in as I am out of options but I would not want to experience what you did. I hope you get better and find relief with something else.

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Posted by Thomsnook@gmail.com (2 posts)
Dec 21, 2017 7:29 PM

Bummer man....which device was it.

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Posted by lorenjay (3 posts)
Jan 02, 2018 7:28 AM

Sorry to hear about your bad experience. I had my permanent SCS installed on December 19th. My paddles also became loose and moved and failed to provide proper coverage. I had the revision completed on December 29th and all is well. Getting full coverage as promised and almost 100% pain free. I am fused from C2-T2 and L3-S1 and have had over 19 neck and back surgeries. With my Temporary installation, the permanent SCS installation and the revision, that brought my total surgeries to 49 since 1994 and for the first time in my life I am feeling like a human being again. I wish you well and hope you find something that will work for you.

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Posted by JosephCross (3 posts)
Mar 27, 2018 3:25 AM

To larenjay: Wow. I'm glad you were able to get relief like you have. I am thinking about having the conversation with my pain doctor and your experience has given me new hope. I have only had 5 surgeries so maybe there is hope for me. Of course every one is different but if I could get 50% relief I would be astatic. I hope you can get your life back to where you want it and be able to laugh about it some day.

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Posted by RayB (2 posts)
Apr 23, 2018 7:21 AM

Hi Las First off, this is my first post here on this forum. So hello to all! Like you I was not aware of the thoracic issues that came with the SCS. In my case, the stimulator is working great thus far. I have had no issues what so ever (well a little charging issue quickly resolved). I would gladly take the back cramps over sciatica any day of the week. Sorry to hear you had this experience. Life had me down and out and I thought this stimulator thing was quack medicine. it became my only option. I got it and have have not looked back! I really wish it would have worked out for you. It is a life changer when it works properly.

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Posted by ferdin58 (1 posts)
Sep 07, 2018 5:59 AM

I had the trial (cervical) which was very successful but the doctor is saying now that there is not enough space to thread the paddle lead into place because of spinal cord narrowing. Do you know if they used a paddle lead on your cervical problem? Someone told me that the narrow lead (used in the trial) could be just as effective but there might be an issue with migration. Any thoughts are greatly appreciated. I really don't want to get another fusion because of the risks.

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Posted by ElaineR (1 posts)
Dec 06, 2018 8:07 AM

What do you mean by migration?

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