Perc SCS leads

Posted by Linda4165 (6 posts)
Jun 14, 2013 4:46 AM

My SCS was implanted October 31, 2012. It has worked great! Two weeks ago, I noticed that I had difficulty driving even a short distance because my leads were protruding. It caused pain to touch them or lean against them. My stimulator required more amplitude to cover my pain. However, gradually the leads seemed to move back in place and I saw a rep who reprogrammed me. Things were good until yesterday. I was swimming and when I got out of the pool, the same thing occurred. The leads could be felt and seen easily, 3-D. It felt like something tore in my back. Again, the stimulator doesn't seem to work as well as it has in the past and my back hurts. I am thin. However, the leads have always been a little bumpy where the anchor is placed. This is not the anchor, though. My husband can see the difference, too. Anybody have any experience with this problem? Thanks for any advice.

Posted by VEM (205 posts)
Jun 14, 2013 6:47 AM

Linda sorry UR having this problem w/UR stim. Have U phoned UR rep about this?Where is UR SCS implanted if I may ask. I am at this time trying to get mine adjusted! Hope 2 havep appt w/my St Jude Medical rep early nxg week! Hange in there. Let us all know how it is going if U would darlin'! Sendin' luv understanding support & hugs! 'bamaVickie & Hershey...

Posted by Linda4165 (6 posts)
Jun 14, 2013 7:36 AM

I told my rep about it last week when he reprogrammed me because the stimulator was no longer effective in any program. Up to this time, I had 100% pain relief. The IPG is implanted in the left buttock, but the implant site doesn't bother me at all compared to the pain that I had experienced before the SCS. When I saw the rep, the wires were no longer sticking out. My husband is a doctor and verified that I wasn't imagining that these leads were almost poking through my skin. His assessment (the rep) was that scar tissue was pushing them around. Since he was able to successfully reprogram me and the leads had settled back into place, I was satisfied. I considered it a freak experience. Now, that it has happened a second time, I would like to know if anyone else has had this occur? Does this happen when the leads migrate? How do you tell if the leads migrate? Thanks, I appreciate the support.

Posted by joanned (18 posts)
Jun 14, 2013 8:04 AM

Linda: Seven months after receiving my SCS, I got a severe jolt one day when I turned my SCS on. My husband was facing me when it happened and he wondered what was going on. Turned out my leads had moved 6-1/2" away from the spine where they had been placed. The surgeon HAD NOT ANCHORED THEM, but rather tucked them in!!!! I had to have another surgery to replace the leads and the IP as it also had turned on its side and was night to impossible to charge. So it was start over from the beginning. I insisted that the second neurosurgeon tack them in place and have not had a problem with that since. Good luck to you. But get back to the surgeon since the rep couldn't help you. It was my rep who arranged for the Xray which showed the leads had moved so far. Joanne






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