Lois Eileen


 
Posted by loiseileen (16 posts)
Sep 03, 2013 11:11 PM

I am still here. I only had the scs in two days as I managed to break a wire and pull out a lead and the stitches. I think it happened when I drove the car. It was long enough to know that I want to go ahead with the implant. Just waiting for neurosurgeon to set appt. Can you tell me how long I have to be extremely careful so I do not pull anything apart this time? I really tried to be careful but now I feel as though I am going to have to lay around on my stomach and do nothing for how long?? Thanks for your help. Blessed day to all, Lois

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Posted by ggerbrandt (142 posts)
Sep 03, 2013 11:38 PM

Well, the NO BLT RULE is one that needs to be followed: NO Bending/Lifting/Twisting. Why take a chance and create a situation where you increase scar tissue? Scar tissue just causes the doctor more difficulties in doing things the way they want to do them. Whey creat a situation where you put yourself in a position of not being able to benefit from the SCS? I waited well over six months before I really began to push things. My doctor told me to begin with NO BLT and for the lifting, nothing heavier than a 5 lb. bag of sugar. Please, be careful.

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Posted by jinglepaws (220 posts)
Sep 03, 2013 7:42 AM

The purcutaneous (SP?)lead vs paddle lead should be investigated. Which type is your doctor intending to use? The paddle leads are secured to the spine bone, provide strong coverage,and are less prone to being pulled out of position. They tend to work better for active people. Patience is a must if the procedure is to successful. No BLT is crucial for 2 - 3 months minimum (maybe longer depending on your particular condition(s) and your doctor's judgement). This does not mean, however, that you won't be able to do any activity at all. Just be careful, gentle, and use common sense. Don't push to do too much, too soon.

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Posted by loiseileen (16 posts)
Sep 04, 2013 10:34 PM

I did well following the BLT rule, it was when I drove that caused the problems. I don't understand why they don't wrap something around you to secure all of the wires etc. to your body instead of just hanging loose? I was only the 7th paiteint that my pain doctor has done so I guess they are still learning also. I am already practicing the BLT rule and trying to get my house in order before the surgery. Thank you

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Posted by jlboman (33 posts)
Sep 04, 2013 12:24 AM

LoisElileen,

 

Did they not tape up the leads to your back? I was taped from the thoracic to lumbar area with mine in order for them to remain secured.

All the best!

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Posted by jinglepaws (220 posts)
Sep 04, 2013 7:22 AM

I, too, was well taped up during the trial. Can't believe a doctor would not securely tape the leads in place during the trial, unbelievable!

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Posted by loiseileen (16 posts)
Sep 05, 2013 3:36 AM

NO, they did not tape them up. I left the surgery center with them all just hanging. I talked to them after the Dr. removed it and they said they would look into doing something different from here on. I would think so. Not a good experience. I do not feel responsible for everything coming undone. Hope I have a better time with the implant surgery.

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Posted by Attheinlet (24 posts)
Sep 05, 2013 2:59 PM

I was also heavily taped. My doctor usually secures with tegrederm first and then pads and tape. But since I am allergic to all but silk tape, they just heavily taped it down with silk tape. Did you have a rep in the surgery? Wouldn't they know to tell the doctor they need to secure it? Also did your doctor awaken you during the implant to see if he had the right area activated? I understand that doctors who awaken you and have the SCS activated to find the correct location have a higher success rate. Best of luck! I sent you a PM on Aug 6 or 8. It might give you something to ask about before the final implant. I hope you got it.

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Posted by loiseileen (16 posts)
Sep 10, 2013 11:53 PM

Attheinlet, Thank you for all of your input. I am also allergic to tegrederm and when they woke me up they kept saying are you sure you are allergic to it?? I had already explained to three nurses and the rep that I was. They decided it would be ok for a few days. ??? I just want to get to a real dr. that is experienced with all of this. I felt that they had it activated correctly. It has been months since I first started this journey and I have not heard from the neurosurgeon yet on a date. I am in no hurry to start the implant after all the trouble with the trial scs.Thanks for the personal message also. I will let you know when I finally see a Dr.

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Posted by gooneybirds (77 posts)
Nov 19, 2013 11:54 AM

You are not the only one that has been left with the wires hanging. My trial was done on a Friday afternoon, and the wires pulled loose within a few hours, couldn't reach the doctor nor the SCS rep for the entire weekend, and the doc wanted to pull the trial on Mon., so no real test. I went ahead with the implant, hoping things would go better -- big mistake as EVERYTHING went wrong, and finally had to have it removed. My story is one of the bad ones and thankfully not everyone goes thru what I went thru. Just take your time, learn everything you can, pick the brains of everyone on the forum, and try to get the best and most experienced doctor you can to do the permanent implant Good luck!

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Mike Roman

Michael Roman will always be lovingly remembered for inspiring so many who suffer from chronic pain. He toured the country sharing about his battle against chronic pain — urging others to never give up. Through determination and a positive outlook, Michael lived his life to the fullest, while also giving hope and strength to countless people who faced seemingly insurmountable situations. Michael will be missed, but his positive influence lives on.

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