Trial scs


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Posted by grizzly65 (11 posts)
Jan 20, 2016 5:54 AM

I am doing the scs trial right now, on my second day. Today the stimulation has moved up into my torso. I called and was told the lead probably slipped due to only being taped. My question is when they do a permanent implant, what is better, regular or paddle lead? Does the paddle lead secure the lead better? Do I have any say in whether they put in a paddle lead or not? At this point I am getting enough relief to say yes go ahead with the permanent scs. Any input would be much appreciated!

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Posted by flygal (483 posts)
Jan 21, 2016 1:38 AM

G,
I am so glad your trial is going well despite the hiccup with lead.
If I recall correctly, the paddle lead is sutured in place, so less likely to migrate. Again, I think the non-paddle leads are placed like your trial but not sure how secured. This would be a good question for the rep or your doctor.
I have the paddles; once my 3 month limited BLT was completed, I have had no coverage issues (except one broke because I was training too hard, I think; the replacement is doing just fine). I am very active and plan to stay that way as long as I can so unrestricted movement is a necessity.
hope this helps. I would also ask your PM which type leads he anticipates implanting, and why.

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Posted by grizzly65 (11 posts)
Jan 21, 2016 8:19 AM

Thank you flygal, I have a consult Feb 2 to decide whether to proceed with the permanent scs or not. I had issues with pain at the insertion site of the lead which prevented me from standing up straight, but the stimulation helped my leg pain. Hope they can figure it out so I am able do go ahead!

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Posted by autocrosserdan (44 posts)
Jan 22, 2016 6:57 AM

Keep in mind you will have incision site pain. The key is being able to ignore that pain so that you can concentrate on what the leads and the SCS is actually doing. The permanent implant is secured inside the body. I would talk with your doctor to find out what they use. Another key is ensuring you limit your bending, lifting and twisting so that the leads have time to scar in. This will eliminate the risks of them migrating and then not fully covering your pain area. I had mine done in November. The hardest part for me, also being active like flygal, was using some self-discipline to not try things too early; i.e. yoga, running, cleaning around the house, racing my car, etc...

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Posted by joanned (18 posts)
Jan 28, 2016 5:12 AM

I have had the paddle leads TWICE. My first SCS was NOT fastened in place and after a few months I had the sensation of an electric shock. I went in to see my rep, who arranged for an Xray (my neuro surgeon had moved out of town). My leads had moved 6-1/2 inches. So I had to go through the surgery again and they replaced everything, moving my charging unit as well, because it too had placement problems. Everything has been fine ever since.

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Posted by grizzly65 (11 posts)
Jan 28, 2016 5:19 AM

Oh my gosh! Sorry you had to go through that! How long since you got the 2nd scS? I spoke to my pain specialist and he said most likely it will be a paddle lead so him and the neurosurgeon that did my lumbar fusion will put it in . I find out when on Feb 2. I am ready. Once the trial was taken out I wanted it back in.

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Posted by flygal (483 posts)
Jan 28, 2016 6:28 AM

Grizzly,
To me that is one of the best tests of the trial: when it is removed you can tell the difference and want it back. I am so glad you were able to have a good trial despite the problems initially. I hope you get your implant soon and start to get your pain controlled.
flygal

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Posted by joanned (18 posts)
Jan 31, 2016 2:24 AM

My original SCS was installed 1/26/11 and replaced 6/25/11. My first doctor was a neurosurgeon as well, and he had done surgery on my back. Looking back, the second doctor was known in that practice for doing SCS surgeries. I have not had any problems since then, but I do know that my charger needs recharging more fre1uently now so one of these days that will have to be replaced.,

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Posted by grizzly65 (11 posts)
Feb 01, 2016 4:03 AM

Do any of you have muscle weakness and cramps along with the leg pain? I'm wondering if any of the symptoms besides pain have eased since you got the scs. Do you still have the pins and needles ?

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Posted by flygal (483 posts)
Feb 01, 2016 4:30 AM

I did have muscle weakness from being a couch potato all those years I had uncontrolled pain. Since my implant I have been able to rehab myself so my muscles have improved a lot. I do still get cramps every now and then as well..

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