New SCS for me


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Posted by flygal (474 posts)
Aug 10, 2016 10:33 PM

After 9 years I am getting an upgrade. Can't wait. A couple of months ago I had severe pain that was 1-2 nerve roots above where my stim reached. So when my doc puts leads higher up, he is also replacing my battery with latest model. Can't wait to take it for a test run after healing. Don't think I will get to do my triathlon as planned in October, but will definitely be training for next year as soon as possible.

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Posted by jinglepaws (220 posts)
Aug 10, 2016 12:49 AM

So, do tell, I have an older model too (circa late 2012), what's new and improved with the latest system? Does it eliminate the detectable stim signal so you get the relief w/o the vibration sensation? Is the internal IPG any smaller? I'm just really curious. I'm not anxious to have "the 20,000 mile tune up". Next month will be 4 yr anniversary for me. So far, battery is hanging in there fine although it is taking slightly longer to charge at this point -- but not bad though. Hope it lasts another 5 years or more before needing replacement. My fingers are crossed. Is your insurance fighting you on paying for the total replacement? Do you have a firm date yet?

I have been checking the forum frequently and am truly dismayed to see so few new posts. I hardly see any of the old gang on the board anymore. This used to be a thriving community. I'm sad. It's barely active now.

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Posted by flygal (474 posts)
Aug 10, 2016 1:22 AM

JP
I know what you mean about the site having turned into a desert. I am very dismayed; apparently it is not a priority.
I think the battery is smaller; will let you know other upgrades after implant. I rarely turn my stim high enough to feel; for me it works really well even though volume is low. Found that out when I started to fly and run; the sensation would be very distracting, so experimented with leaving stim level low, and it had worked really well. I know there are some new stims out there that offer pain relief without the sensation, but they have to charge really frequently.
Not sure if insurance fought very hard; it is workers comp, and for a change the MD reviewer wrote that it was needed, as I had gotten such good results.
My date is the 23rd; less than 2 weeks; can't wait.
Initially a few months ago I developed severe flank pain and thought I was passing a stone; CTs were normal and was d/c from ER. A few days later the pain was really bad and I could not sit, only lay partly on my side, so went to ER where my stim doctor works; was admitted for 4 days to determine problem, and determined my pain related to my injury had traveled up cord (actually without bony damage) and said I could either have fusion or implant revision. No contest; would rather have stim revision and be in hospital overnight and back to work (from home) in 3 days, than major back surgery and in hospital not sure how long, and not sure how long off work and unable to train.
I have already had to give up on my triathlon this year; need to be able to start training for next year as soon as possible. Plus I want to go snowboarding again next year, and can't see that after fusion.
glad you are still around. Best of luck to you

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Posted by jinglepaws (220 posts)
Aug 10, 2016 3:07 AM

Having already had a spinal fusion, avoid it if at all possible. Mine was at the lowest possible level (L5, S1) and it still limits my range of motion. Given that so many things were going wrong, I still think I didn't have a choice but if you have a choice, avoid it. In the future, I will do everything possible to avoid any further back surgery. I'll be waiting for your post surgery update. Back on pain meds in the interim? I still remember the misery of "the wait"! Hang in there. BTW, I usually keep my stim level quite low too but have been having more pain lately. Hopefully, I can turn back down soon.

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Posted by flygal (474 posts)
Aug 10, 2016 6:56 AM

I was on meds for a while but decadron helped bring it to manageable state. Plus I am able to work from home temporarily
Will keep you updated post op

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Posted by flygal (474 posts)
Aug 22, 2016 9:07 PM

Surgery tomorrow; any prayers appreciated. I have total confidence in my team but help from above for surgeons and medical team always good as well.

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Posted by jinglepaws (220 posts)
Aug 23, 2016 12:09 AM

Sorry I missed you before surgery. I so hope things went well. Here's to a full and speedy recovery!

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Posted by flygal (474 posts)
Aug 23, 2016 12:14 AM

Will keep you updated. Go in in about 2 hours.

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Posted by flygal (474 posts)
Aug 25, 2016 2:20 AM

Back home post op. Definitely sore but I am very excited to test run my Spectra

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Posted by flygal (474 posts)
Aug 25, 2016 2:20 AM

Back home post op. Definitely sore but I am very excited to test run my Spectra

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