Advice for a successful trial


 
Posted by jminyard (3 posts)
Mar 20, 2017 3:11 PM

I was recently speaking with a group of patients and we were discussing how to get the most out of an SCS 'test-drive'. I mentioned that prior to my test-drive my physician asked me to make a list of 5-10 activities that I enjoyed doing (mowing my lawn, walking to the frozen yogurt store with my daughter, sitting through a movie while on a date with my wife, etc.). He then asked me to write down my pain score (1-10) next to each activity. I then drew a line down the center of the paper, listed the same activities on the other side of the center line. After I woke up from the procedure to place my leads so I could start my 5 day test-drive my physician asked me to try doing some of the activities on my list and rate the activities on the pain scale. By using this simple process we were able to clearly see the differences in pain pattern / symptoms felt pre test-drive and post test-drive. This provided a really great insight into how the SCS could help manage my pain effectively and in which areas I would need tweaking after having my implant procedure completed. Just a suggestion....wishing everyone the best! Take care- Justin Minyard

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Posted by flygal (479 posts)
Mar 21, 2017 5:06 AM

Something else I suggest during trial is to try to do more than normal. For example, if you can walk about 25 feet, then try to increase the distance; if you develop pain, try to use the stimulator to control the pain.
flygal

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Posted by YOGA55 (2 posts)
May 14, 2017 9:49 AM

Hello all. I am to receive my test SCS tomorrow. I am going with Boston Scientific. I have had so many procedures over the years, afraid to be hopeful. Thank you for sharing your experiences, it is helpful to feel less "alone with pain". My concern with SCS is radiating pain I know to be nerves in distress, I've always understood permanent damage would occur if left compromised. SCS sends a different message to my brain....... This worries me a bit. Any thoughts? Of course, my current state is unacceptable. Lumbar spine is badly deteriorated. Thank you for providing a place to speak "pain". I miss my life! Yoga55

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Posted by flygal (479 posts)
May 14, 2017 1:33 PM

Yoga,
Yes, the pain will still be lying underneath, but having the ability to change the sensation has allowed me to greatly improve my life from that of being a couch potato for most of the day, to returning to my active lifestyle. Granted, not everyone gets as much back as me, but even if you can reclaim half of what you have lost, would that not help you continue? Try things during your trial that normally cause problems, and see if the stimulator helps you. If you have questions please feel free to post them here. If you have concerns about sensation or Pain not being covered, be sure to call your rep; Yhey want this to help you.
Flygal

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Mike Roman

Michael Roman will always be lovingly remembered for inspiring so many who suffer from chronic pain. He toured the country sharing about his battle against chronic pain — urging others to never give up. Through determination and a positive outlook, Michael lived his life to the fullest, while also giving hope and strength to countless people who faced seemingly insurmountable situations. Michael will be missed, but his positive influence lives on.

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