Frustrated, hurting, needing to vent


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Posted by trumiester (22 posts)
Jun 16, 2013 10:17 AM

Hey all,

First and foremost, I havent been active for a very long time. I was really active at one point, then kind of fell off the face of the earth, came back appologized and once again, disappeared. Well, I needed to vent so figured I'd come back, catch up and say hi to everyone. So Ive been looking over who is active and who isnt, not recognizing a whole lot of people from when I was active , some I do recognize - like my good friend Flygal  (hi by the way), those of you who dont know me, here goes about who I am. 35yo young man from Tampa FL, firefighter for 12yrs. Dealt with severe backpain since 2002, had a SCS perm implant 2009, and then diagnosed with MS early 2011. Thats about it in a nutshell.

The SCS worked like a dream - until the wires moved out to the side instead of the falling. Was referred to a orthopedic specialist who long story short - performed surgery, removed the scs and implanted a fake disk (total disc replacement) at L4,L5 and 4 screws at L5S1. Looks really cool on the xray.

Just like when I had the SCS, the surgery worked great (after getting over the surgery and essentially learning to walk again - almost), ended up staying on disability which turned to LTD and then pushed out on retirement where I went bored out of my mind sitting at home watching the same old tv all day long. Theres only so much court room drama and hearing - You are the father that one person can take. Thankfully found a part time desk job almost a year ago where I was able to work from home and still able to keep my retirement. Just took a promotion which now involves me sitting at a desk 8 hours a day in the office but am really having a hard time with the sitting. I've tried different chairs here at the office, none of them seem to help  :-(

Now Im finding myself in pain more, meds are no longer seeming to work, getting depressed all as a result and nowhere to turn and dont know what to do. - I'm frustrated.

Just wanted to vent ......

Truman

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Posted by flygal (474 posts)
Jun 16, 2013 11:28 AM

Truman,
Hi back and you are welcome here anytime!! Miss you when you are not here.
Will your job purchase you a chair that owrks for you? If so (and they kind of have to, due to ADA, unless you are concerned they might fire you) I would go to all the chair and office furniture stores and find one that fits for you. I found one 11 years ago and it is still going strong. Be sure it feels right on your back. If you think it is the one, see if the store will let you trial it for 2 weeks or so. If it works, like it did for me, you will at least be able to sit more comfortably. Don't forget frequent DVT breaks, as we call them (leg stretches, blood clot preventors, latrine breaks, etc). Is there a specific place that hurts? For me, ice has really worked wonders.
Hope to hear more from you; we are here for you.
flygal

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Posted by trumiester (22 posts)
Jun 16, 2013 11:47 AM

Flygal,  there is a smile on my face this evening, being able to connect with an old friend is just great.

I have a custom orthopedic chair at home that I can bring into the office but I have to have my MD complete paperwork first and then have HR approve it all BEFORE I can bring it in.

My manager is going to try and get the approval quickly without the paperwork if possible as they dont have to buy anything for me as I have the chair already. Just frustrated with the red tape knowing Im here in the office and the chair is at home.

Great to speak to you as always  :-)

 

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Posted by flygal (474 posts)
Jun 16, 2013 11:54 AM

Truman,
Glad you already have a chair that works for you; hopefully the paperwork will go rapidly. Do you have a backup you can use at home?
flygal :)

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Posted by VEM (205 posts)
Jun 17, 2013 9:22 PM

Hi Truman, nice to meet you. flygal was here when I came on board. She gives great advice 2 others. Hope that U find just the chair that fits "just right"...TC 'bamaVickie

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Posted by ggerbrandt (142 posts)
Jun 17, 2013 11:56 PM

Truman... Good to see you back! Are you taking any sort of anti-depressant? I do, and it is lexapro. This made a real difference in my outlook. I still get depressed, but with prayer and the pill and loads of love from others, I am able to manage it. Hang in there! Gary

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Posted by trumiester (22 posts)
Jun 17, 2013 2:12 PM

Hey y'all, So status update, my manager emailed human resources at the company headquarters. Long story short, they will not approve for me to bring my chair in to work. Comes under liability reasons if for some reason the chair fails to work and I get hurt then they have to cover it under workmans comp and don't want to risk that with a chair they don't own and can't be responsible for. They did however give me the paperwork for my doctor to complete that states I need an orthopedic chair and then the company will purchase a chair for me similar to the chair I already own. I could be comfortable as early as tomorrow if I could bring my own but just have to go through some red tape. I was taking anti depressants - Effexor combined with Xanax for anxiety and trazodone to help me sleep. When I got my new insurance, my existing psych was no longer in network so I saw someone new and he does not prescribe Xanax so he put me on something else seroquel, that covers all 3 meds. Put me on a 2 week trial and I haven't had the chance to go back due to work schedule but can do so now and need to see him again. First time I took it, it knocked me out and I was groggy for 2 days. Needless to say I stopped taking it so no longer on anything antidepressant wise. I go see the pain management dr in the morning. Will talk to him, see what his thoughts are. It's after 1am here, good night all John Truman

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Posted by trumiester (22 posts)
Jun 17, 2013 2:14 PM

Gary, .... I try to never under estimate the power of prayer. It's what keeps me going :-)

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Posted by VEM (205 posts)
Jun 20, 2013 10:53 AM

Prayers is a very powerful thing....helps me so very much as it can others as well! 'bamaVickie

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Posted by giddyup (2 posts)
Jun 20, 2013 11:23 AM

trumiester I too disappeared for awhile and probably won't get on to much as I have twin granddaughters due soon. I did have a thought sitting is awfull for me could you get a tall table to do your work on and stand.that is much better for me

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Michael Roman will always be lovingly remembered for inspiring so many who suffer from chronic pain. He toured the country sharing about his battle against chronic pain — urging others to never give up. Through determination and a positive outlook, Michael lived his life to the fullest, while also giving hope and strength to countless people who faced seemingly insurmountable situations. Michael will be missed, but his positive influence lives on.

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